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Ihre Meinung kann dazu beitragen, die Zukunft der Herzversorgung mitzugestalten

25. Juni 2026 | Von Mended Hearts Europe

Diese Geschichte teilen

BHFCRC National Research Collaboration Database logo

 

At Mended Hearts Europe, we believe that patients, families, and caregivers should not only receive care — they should also help shape the future of cardiovascular research, treatment, and support services.

Heart research is most meaningful when it reflects the real experiences, priorities, and everyday challenges of the people living with or affected by cardiovascular conditions. That is why we are pleased to support and share the National Research Collaboration Database initiative developed by the British Heart Foundation Clinical Research Collaborative (CRC).

Currently, this initiative is open to individuals based in the United Kingdom, though we hope to see similar opportunities expand more broadly in the future.

This initiative offers people affected by or at risk of heart conditions the opportunity to share their perspectives and contribute to more patient-centered heart research and care.

Menschen, die sich in einem Kreis einer Selbsthilfegruppe an den Händen halten.

Why Get Involved?

By registering, you can:

  • Make your voice heard—Highlight what matters most to you so researchers focus on the right priorities
    Access opportunities for involvement that match your interests and availability
  • Feel more connected – Join a growing community of people with shared experiences, learning and growing together
  • Access invitations to events and resources, that will support you in developing your skills and confidence

Who Can Register?

Whether you:

  • live with a heart condition,
  • are at risk of developing one,
  • care for someone affected,
  • or simply want to support better heart care and research,

you can register in just a few minutes.

Sign up now on the BHF CRC website.

If you need support with the registration process, you can also access a step-by-step guide.

Real stories. Real impact.

Learn more about the initiative and hear directly from people involved:

  • Watch Keith’s story to learn how this initiative is helping patients, and the public play a bigger role in studies.

 

  • Hear from Professor Rod Stables, Clinical Lead at BHF CRC, on why your input is vital to making heart care more people focused

 

At Mended Hearts Europe, we believe that patient voices and lived experiences play an essential role in building more inclusive, responsive, and person-centered healthcare systems.

Every perspective matters — and every voice has the potential to make a difference.

A group of people sitting in a circle during a support group session, smiling and engaging in conversation.

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Werden Sie Mitglied unserer HeartFelt Community

Werden Sie Teil eines wachsenden Netzwerks von Menschen, die von Herz-Kreislauf-Erkrankungen betroffen sind und ihre Geschichten und Erfahrungen austauschen.