Your Voice Can Help Shape the Future of Heart Care

25 June 2026 | By Mended Hearts Europe

At Mended Hearts Europe, we believe that patients, families, and caregivers should not only receive care — they should also help shape the future of cardiovascular research, treatment, and support services.

Heart research is most meaningful when it reflects the real experiences, priorities, and everyday challenges of the people living with or affected by cardiovascular conditions. That is why we are pleased to support and share the National Research Collaboration Database initiative developed by the British Heart Foundation Clinical Research Collaborative (CRC).

Currently, this initiative is open to individuals based in the United Kingdom, though we hope to see similar opportunities expand more broadly in the future.

This initiative offers people affected by or at risk of heart conditions the opportunity to share their perspectives and contribute to more patient-centered heart research and care.

People holding hands in a support group circle.

Why Get Involved?

By registering, you can:

Make your voice heard—Highlight what matters most to you so researchers focus on the right priorities
Access opportunities for involvement that match your interests and availability
Feel more connected – Join a growing community of people with shared experiences, learning and growing together
Access invitations to events and resources, that will support you in developing your skills and confidence

Who Can Register?

Whether you:

live with a heart condition,
are at risk of developing one,
care for someone affected,
or simply want to support better heart care and research,

you can register in just a few minutes.

If you need support with the registration process, you can also access a step-by-step guide.

Real stories. Real impact.

Learn more about the initiative and hear directly from people involved:

Watch Keith’s story to learn how this initiative is helping patients, and the public play a bigger role in studies.

Hear from Professor Rod Stables, Clinical Lead at BHF CRC, on why your input is vital to making heart care more people focused

At Mended Hearts Europe, we believe that patient voices and lived experiences play an essential role in building more inclusive, responsive, and person-centered healthcare systems.

Every perspective matters — and every voice has the potential to make a difference.